Groundbreaking Meeting of Researchers Working to Find a Cure for Usher Syndrome Type 1F, the Leading Cause of Deaf-Blindness Among Jews, taking place in Boston, MA, on May 12th, 2017
FOR IMMEDIATE RELEASE
Newton, MA, Tuesday, April 4, 2017 – Usher 1F Collaborative will be hosting a groundbreaking meeting bringing together world renown academic biomedical researchers from around the United States and Canada, along with researchers from the Harvard Stem Cell Institute, on May 12th, 2017. The goal of the conference is to foster collaboration and to share data among the researchers to enhance and advance the pace of research in order to find a cure.
Usher Syndrome is the leading cause of deaf-blindness affecting Ashekanzi Jews, 2% of whom carry the recessive gene for type 1F. Those affected are born profoundly deaf with impaired balance. Then, retinitis pigmentosa causes them to gradually lose their vision, first with night blindness in early childhood, followed by increasingly narrowing tunnel vision, progressing eventually to total blindness.
Elliot Chaikof, Surgeon-in-Chief at Beth Israel Deaconess Medical Center in Boston, and his wife, Melissa, have two daughters affected by this disease. They founded Usher 1F Collaborative in 2013 after learning that research for type 1F was minimal and direct funding was negligible. To date, the foundation has funded $300,000 in research with four research labs now working toward a cure.
Usher 1F Collaborative
321 Walnut Street
Newtonville, MA 02460-1927
Contact: Melissa Chaikof
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